For local families coping with rare disease diagnoses, RareKC offers support, community

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Ainsley Bridges, 5, of Westwood Hills, has PKU, a rare disorder with serious developmental risks if she doesn’t restrict her protein intake.

Just looking at 5-year-old Ainsley Bridges from Westwood, one would never suspect she has any health complications. The friendly 5-year-old enjoys gymnastics, ballet and swimming.

Yet Ainsley lives with phenylketonuria, or PKU, a rare, genetic and lifelong disorder that causes brain damage if left untreated.